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SMA (spinal muscular atrophy)

Spinal Muscular Atrophy

How Rebecca Van Fraassen Battles SMA Every Day to Live Life to the Fullest

When Rebecca Van Fraassen was two years old she was diagnosed with spinal muscular atrophy (SMA), a rare genetic disorder.
Spinal Muscular Atrophy

Research and Development Are Crucial to Discoveries in Rare Disease

Spinal Muscular Atrophy

New Treatments for SMA Provide Options for Patients

Rare Disease

The Rare Disease Opportunity of a Lifetime

Rare Disease

A Rare Disease Isn’t Stopping This Ambitious Young Artist

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All SMA Patients Need New Treatment Access

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