Lupus causes chronic pain and inflammation, but managing symptoms is possible through medications, lifestyle changes, and supportive therapies.
People with various rheumatological diseases, such as lupus, often endure chronic inflammation and pain. While managing this pain can be challenging, several strategies can help alleviate it.
Lupus is an autoimmune disease where the body’s immune system mistakenly attacks its own tissues, leading to inflammation, pain, and potential organ damage. It affects five million people globally, and currently, there is no cure. Individuals with lupus may experience periods of remission between episodes of active disease, known as flares, during which pain can be particularly intense.
What type of pain can one expect?
During a lupus flare, many individuals experience joint and muscle pain, headaches, and chest pain, especially when taking deep breaths. These symptoms may be caused directly by lupus or as side effects of lupus treatments.
Lupus-related joint pain can significantly impact daily activities. This pain often worsens at night due to a natural decrease in the anti-inflammatory hormone cortisol and the stiffness that comes from lying still for extended periods, which can disrupt sleep.
How can this widespread pain be managed?
- Prescription Medications: Options include hydroxychloroquine, anti-inflammatories, corticosteroids, immunosuppressants, or disease-modifying antirheumatic biologics.
- Over the Counter (OTC) NSAIDs: Nonsteroidal anti-inflammatory drugs can help relieve pain.
- Hot or Cold Therapy: Applying heat or ice to painful joints and muscles can provide relief.
- Avoid Prolonged Inactivity: Avoid sitting in one position for too long to prevent pain.
- Regular Exercise: Engage in daily exercise under the guidance of a healthcare professional.
- Physical Therapy: This can help improve mobility and reduce pain.
- Adequate Sleep: Establish a regular sleep routine to ensure sufficient rest.
- Anti-Inflammatory Diet: Focus on a diet rich in anti-inflammatory foods, including sufficient calcium and vitamin D.
- Alternative Treatments: Consider acupressure, acupuncture, or biofeedback.
- Relaxation Techniques: Practice slow, deep breathing, mindfulness meditation, yoga, or tai chi to distract from pain.
- Engaging Activities: Participating in hobbies or activities can help shift focus away from pain, even with limited mobility.
- Mental Wellness: Address mental health issues like stress, anxiety, and depression, as they can exacerbate pain.
- Support System: Connect with others who have experienced similar pain for understanding and support.
- Stay Connected: Keeping in touch with friends and family can boost overall well-being and improve mood.
In recent years, the diagnosis of autoimmune conditions has risen dramatically, prompting a growing need for resources, education, and support.
Lupus Ontario is the largest Canadian provincial organization focused on improving the lives of lupus patients and their families. Lupus Ontario’s mission is to provide vital support, education, awareness, advocacy, and research through the fundraising efforts of our staff and volunteer community to help those with lupus live longer, healthier, and better lives.
Visit lupusontario.org for additional resources and support.
